Data set
  • Digital & artificial intelligence
  • Retina

Age-related macular degeneration data set

  • Last updated or reviewed: 1 July 2019
  • First published: 1 July 2019
Age related macular degeneration data set (PDF)

Clinical dataset for services caring for people with late age-related macular degeneration. It defines the core variables, formats and follow-up measures needed for consistent data collection, audit, outcome analysis and research across paper and electronic systems.

This dataset sets out a standard way to record clinical information for people with late AMD, including geographic atrophy and neovascular disease. It is designed to support routine care, clinical audit, service comparison and research by making data definitions consistent across sites and systems. It covers baseline assessment, treatment start and follow-up for each eye, helping services collect comparable information without adding unnecessary burden to clinical practice. A subset of this data set is used by the NOD National Age-related Macular Degeneration Audit.